Goals and Achievements

We would like to thank the Microtia community and their friends and family for their continued support and generosity and helping us to accomplish so much. We have documented some of our main achievements below together with our future goals. If you would like to help the charity further with our aspirations, please contact us via email info@microtiauk.org

 

Achievements

2010

Microtia Mingle Support Group created as a Facebook support group (now Microtia Mingle UK – Microtia UK Support Group) Click here to go to Facebook

2012

Children’s book “Issac and Lilah” – a story about similarities and differences written and printed to promote positive image.

2013

Microtia UK charity evolved from the Microtia Mingle Facebook group.

Coram Fields Picnic organised. The first time in UK medical professionals and those involved in scientific research were invited to present on key topics to people and families affected by microtia.

Workshop for adults with microtia to talk about their life experiences and to learn from them.

Charity website launched.

2014 

Charity bracelets designed and produced to raise awareness of the condition within the community and to raise funds for Microtia.

Microtia UK awarded charity status.

First fundraising event – Charity launch party.

New Parents Guide published and distribution started.

Presented in BAPRAS conference and contributed towards the New Care Standards for patients with microtia/atresia. To view, click here

Children’s book “Issac gets his BAHA” about Bone Anchored Hearing Aid surgery written and published. Printing funded by Cochlear & Oticon.

2015

Cuddly toy/mascot designed to raise funds, awareness and promote positive self image.

Paradise Park Microtia UK Family Fun and Information Day sponsored by Cochlear.

Cochlear & Oticon agree to sponsor our new parents guide to help with the printing costs.

2016

London Microtia UK Family Fun and Information Day sponsored by Cochlear & Oticon.

Edinburgh Microtia UK Family Fun and Information Day sponsored by Cochlear & Oticon

2017

Life size elephant mascot created to raise awareness at events.

London Microtia UK Family Fun and Information Day sponsored by Cochlear and Oticon.

Edinburgh Microtia UK Family Fun and Information Day sponsored by Cochlear and Oticon.

2018

The launch of a new charity website

Securing sponsorship for our charity fundraising vests which also brought the launch of new children’s fundraising t-shirts so they can join in with raising awareness – Thank you AGILIS Mobile

London Microtia UK Family Fun and Information Day sponsored by BHM-Tech, Cochlear, MED-EL and Oticon.

The following research grants issued:

1) Aston University, Dr Amanda Hall for further research into Single Sided Deafness

2) Centre for Appearance Research, University of England, Bristol for further research of psychological impact if Microtia.

3) Great Ormond Street Hospital for cell Incubator to try to improve ear and facial reconstruction method for the future.

4) Scottish National Ear Reconstruction Services & the University of Edinburgh for Scaffold identification for ear reconstruction.  All results be shared with the Microtia community and medical professionals linked to Microtia.

Goals

Produce more information leaflets (aimed specifically at schools).

Help campaign for mandatory provision by NHS of BAHA soft bands for children with microtia.

Continue to organise annual events for experts to present on chosen topics to the microtia community and continue to arrange microtia community mingles.

Improve psychological support.

Work with medical professionals to create microtia centres of excellence in the UK.

Produce short film on Microtia promoting awareness.

Organise first Family Fun and Information day in Midlands and Ireland

Continue to raise awareness through popular sporting fundraising events.

Continue to support research in to the advancement and improvement of care or life of those with Microtia in the following areas; reconstructive surgery, psychological impact on looking different, impact of single sided deafness and lastly the Improvement of hearing technology.

To organise an event specifically for adults and teenagers