The stories on this page offer an insight into what it is like to live with microtia or to have a loved one born with microtia. Microtia UK would like to thank everyone who has taken the time to share their story with us. If you would like to share your own life story, please contact us at info@microtiauk.org.
Podcast
My name is Sasha and I was born with right-sided Microtia and Atresia. I had reconstructive surgery using rib cartilage when I was 25. I’m deaf in my right ear and have about 60% hearing in my left, and I’ve never used any hearing devices.
Growing up, I was bullied because of how I looked, and for a long time, I tried to hide my difference. But over the years, I’ve learned to embrace my Microtia as one of the most meaningful parts of who I am. The challenges I faced gave me resilience and a deep sense of empathy for others. I’m proud of my Microtia because it has shaped me into the person I am today. It’s allowed me to connect with and support others on similar journeys — and I truly see it as a gift from God.
I started dancing when I was five years old and went on to compete in ballroom and Latin competitions across the UK and the US. I also spent time performing in theatre in the US — creative expression has always been a huge part of my life. Alongside dance and performance, I’ve developed a real love for the fitness and wellness industry, which plays a huge role in how I care for both my physical and mental wellbeing.
I created a podcast called Sasha Says…, where I share stories from people living with Microtia and other visible differences, along with parents, specialists, and advocates. It’s a space to explore mental health, identity, confidence, and what it really means to belong — especially created to support parents of children with Microtia and others living with the condition, so they feel less alone on their journey.
The podcast is available to listen to on Spotify and YouTube, and you can find me on Instagram at @sashasayspodcast
I also volunteer with the National Deaf Children’s Society and give presentations to raise awareness and connect with families.
To any parent of a child with Microtia: your child is not defined by their ear. They are full of potential, strength, and beauty. Remind them every day that they are enough, exactly as they are.
I’m always here to answer any questions or help in any way I can — please don’t hesitate to reach out.